Areti is a 28-year-old young woman suffering from Spinal Muscular Atrophy (SMA) type 2, a severe neurological disease that leads to gradual weakness and atrophy of the muscles, which destroys the patient’s motor skills.
For the last three years, Areti hasn’t been able to get out of bed, since her condition has rapidly deteriorated, while she is also experiencing difficulty breathing, therefore she now requires the presence of a caregiver 24 hours a day.
In spite of all the social and financial challenges she faces daily, as well as the lack of a supporting family environment, Areti has managed to complete her studies in Phycology, while she is currently studying for her master’s degree in Sociology. Areti is already being subjected to an innovative treatment, followed by an intensive physiotherapy program.
“My end goal is to be able to get out of bed and use my wheelchair, so that I can perform activities of daily living with dignity”.
Areti is a firm supporter of collectiveness in making great impact and brining change. “I truly believe in the concept of solidarity. In order to achieve major changes in society, we need many different voices, just like a polyphonic choir does”.
Read more about spinal muscular atrophy
Original article: in Act of Kidness
Photo credit: Act of Kidness
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