Meet Areti

Meet Areti Areti is a 28-year-old young woman suffering from spinal muscular atrophy (SMA) type 2, a severe neurological disease that leads to gradual weakness and atrophy of the muscles, which destroys the patient’s motor skills.   For the last three years,...

Meet Anastasia

Meet Anastasia Anastasia was in an artificial coma for 32 days, before she woke up. That made her the first Greek woman with cystic fibrosis who woke up from a coma and the first ever person who woke up after such a long coma, globally.   In total, Anastasia endured:...

Meet Suzie

Meet Suzie Suzie Birchwood is a dancer, choreographer and the Artistic Director of Arc dance. Suzie has Dystonia and is a wheelchair user. She trained in ballet and contemporary.   When Suzie Birchwood was 16, and on a full scholarship at the London Studio Centre, a...

Meet Chloé

Meet Chloé Chloé Temtchine is an award-winning singer, songwriter and speaker, who was diagnosed with Pulmonary Hypertension and Pulmonary Veno Occlusive Disease (PVOD)   Chloé Temtchine is an Award-Winning Singer, Songwriter, Speaker, and the creator of “Super...

Meet baby Fitz

Meet baby Fitz Baby Fitz was born with a dysfunctioning immune system. His treatment offers hope for curing rare diseases.   Fitz Kettler was born June 21, 2019, without a functioning immune system. Babies with his condition, commonly known as “bubble boy...

Meet Anestis & Dimitris

Meet Anestis & Dimitris Anestis and Dimitris were two brothers who had Klinefelter syndrome. As they were never diagnosed, they had to endure the prejudice of their neighbours in a small village, nearly 40 years ago. Chris, one of the founders of gMendel, shares...