Meet Suzie

Meet Suzie Suzie Birchwood is a dancer, choreographer and the Artistic Director of Arc dance. Suzie has Dystonia and is a wheelchair user. She trained in ballet and contemporary.   When Suzie Birchwood was 16, and on a full scholarship at the London Studio Centre, a...

Meet Chloé

Meet Chloé Chloé Temtchine is an award-winning singer, songwriter and speaker, who was diagnosed with Pulmonary Hypertension and Pulmonary Veno Occlusive Disease (PVOD)   Chloé Temtchine is an Award-Winning Singer, Songwriter, Speaker, and the creator of “Super...

Meet baby Fitz

Meet baby Fitz Baby Fitz was born with a dysfunctioning immune system. His treatment offers hope for curing rare diseases.   Fitz Kettler was born June 21, 2019, without a functioning immune system. Babies with his condition, commonly known as “bubble boy...

Meet Anestis & Dimitris

Meet Anestis & Dimitris Anestis and Dimitris were two brothers who had Klinefelter syndrome. As they were never diagnosed, they had to endure the prejudice of their neighbours in a small village, nearly 40 years ago. Chris, one of the founders of gMendel, shares...

Meet Tom

Meet Tom TOM STANIFORD, AGE 32, WAS DIAGNOSED WITH MDP SYNDROME AT 23, WHEN THE CONDITION WAS RECOGNIZED IN 2013. TOM HOPES THAT ONE DAY ALL THOSE WITH DISABILITIES WILL BE JUDGED BY THEIR ABILITIES ALONE. Tom Staniford, age 31, was diagnosed with MDP syndrome at 23...

Meet Benjamin

Meet Benjamin Benjamin was diagnosed with Klinefelter disease at 25. After struggling emotionally for years, today he is on testosterone treatment and is happily married to a wonderful woman. Benjamin was diagnosed with Klinefelter disease at 25 years of age, just one...